Mission
Cure CMD’s mission is to bring research, treatments and in the future, a cure for Congenital Muscular Dystrophies. Cure CMD will achieve this mission by working globally together with dedicated parent, government and research advocates. By focusing on this mission, Cure CMD will find and fund high potential research and clinical trials. Success will be determined by clinical applications that improve the lives of those afflicted with CMD’s.
Click here to download our brochure in English.
Click here to download our brochure in Italian.
Board Members
Anne Rutkowski
Dr. Anne Rutkowski, Chairman
Dr. Anne Rutkowski, MD is Chairman of Cure CMD and a co-founder. Dr. Rutkowski is a practicing board certified emergency medicine physician in Los Angeles. Dr. Rutkowski’s daughter has congenital muscular dystrophy, subtype, dystroglycanopathy. Dr. Rutkowski graduated from the University of California Irvine Medical School, elected to Alpha Omega Alpha Honor Medical Society. She attended Bryn Mawr College as an undergraduate, graduating Magna cum laude with Honors in Biology. Prior to attending medical school, Dr. Rutkowski taught for 3 years in an inner city elementary school in Los Angeles, as part of Teach for America. She would like to shrink the diagnostic odyssey, see improvements and standardization of guidelines in medical care for all patients with CMD and a focused approach to identifying therapeutic targets. As a former educator, education and improved disease awareness are two further areas of focus for Cure CMD.
Patrick May
Patrick May, Treasurer/Secretary
Mr. Patrick May is the Chief Financial Officer of Cure CMD and a co-founder. Mr. May is a Certified Public Accountant with eight years of experience as a Controller/Treasurer for a for-profit corporation in the greater Kansas City area. Previously he gained four years experience as an auditor with a Big 4 international accounting firm. He graduated Magna Cum Laude from the University of Notre Dame. Patrick is the father of a daughter diagnosed with merosin deficient congenital muscular dystrophy. He shares the vision for CMD to promote awareness and ultimately accelerate therapies and a cure for congenital muscular dystrophy.
We would like to acknowledge Richard Cloud’s outstanding contribution to Cure CMD as one of the original co-founders and former Chairman. Richard Cloud is currently CEO of Prothelia, Inc, a biotech company focused exclusively on muscular dystrophy therapies.
Volunteer and Support Staff
CMD Communications/IT Support Team
Rachel Alvarez
Bio coming soon.
Joey Bower
My involvement with Cure CMD stems from being the father of child with a rare form of Congential Muscular Dystrophy, Jake Bower. His Mom and I knew from the very beginning that we wouldn’t be able to sit around and wait for a miracle. Even before Cure CMD formed, we had started a website for Jake to raise awareness about CMD and the amazing boy on an unknown journey. It was only natural to volunteer to do everything we could to find a treatment or cure in his lifetime. I assist this vital organization with Web Development, eCommerce, Tradeshows, etc. Please join us, if you are reading this, you are the fuel that drives us all.
CMD Grant Writing Team
Charlene York, Sandee Lefcoe, Erin McGuirk
Bios coming soon.
CMD Advocacy
Jackie Nelson
Bio coming soon.
CMD Project Support
Diane Hoban Smith, Susan Sklaroff Van Hook, Ann Cloud, Becky May
Bios coming soon.
CMDIR Lead Genetic Counselor
Ami Mehta
Bio coming soon.
Contact
Cure CMD
P.O. Box 701
Olathe, KS 66051
Ph. 1-866-400-3626
RareShare
RareShare is dedicated to building international online communities designed to increase the level of communication and support among patients, families and healthcare professionals affected by rare disorders.
