Maia’s Story

Maia has congenital muscular dystrophy. When she was eight months old, we noticed that she still wasn’t sitting up, had difficulty holding her head up and spent most of her time lying on her back. We took her in to see the pediatrician who initially in a moment of shock, at how she had fallen off the growth charts and not attained many developmental milestones, diagnosed her with cerebral palsy. Continue reading Maia’s Story

  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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