Thomas and Sophy’s story
Thomas (11yrs) and Sophy (6yrs) both have merosin deficient congenital muscular dystrophy. They are both walking but cannot manage stairs or long distances. Thomas rides an electric scooter at school while Sophy has a manual wheelchair for long distances. Thomas recently had spinal surgery to correct his deteriorating scoliosis. Thomas likes LEGO Bionicles while Sophy loves My Little Pony toys. They live in North Queensland, Australia which is very hot.