Kelly’s Story

Kelly (Ullrich CMD) is 28 years old and working toward her PhD in Creative Writing/Literature at the University of Houston. She tells her own story very well (often poetically), but she asked me, her mom, to write it for the website because she is very busy finishing up summer school teaching and getting ready for the fall semester. She also has another project – she has been spending every Sunday with my mom (Kelly’s grandma), who recently moved to an assisted living facility in Baytown near my brother (about 45 minutes from Kelly’s apartment). Kelly and Grandma have always been close, and she has been a tremendous blessing by taking her to church and “hanging out” with her on Sundays. Continue reading Kelly’s Story


  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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