Come walk, run and cheer 2 Cure CMD Teams to the finish!
2 Cure CMD Teams will walk and run their way through the San Jose and Los Angeles Rock N Roll 1/2 marathons.
To join the San Jose October 3rd event, click here
To join the Los Angeles, October 24th event, click hereCook for a Cure!
Cook For A Cure!, our first-ever fundraising cookbook to benefit Cure CMD.
Over 500 recipes submitted by friends, family, neighbors, co-workers, and acquaintances of the Cure CMD family.
Visit our merchandise page to order your copy.
Naturally Obssessed- The Making of A Scientist
Part of Cure CMD’s mission is to raise CMD awareness and momentum within the medical and scientific communities. We want them to know what life with CMD is like, engage them to study and become passionate about CMD and make CMD their personal mission.
Click here to watch a fantastic PBS video on life as a graduate student in science and learn what their community is like.
Aussies Ride to the CMD Challenge!
Heard of Pedal 4 Pierce?
This is the story of 11 year old Christopher, his friend, Pierce and a bike race in Canberra, Australia
Go to: www.stromloforestpark.com.au
Cure CMD Team Raises $21,000!
Congratulations to the Long Branch 1/2 Marathon Cure CMD Team!
To read about the Team: www.curecmd.org/njmarathon2009
Join a Cure CMD Team. Upcoming events: San Jose and Los Angeles Rock N Roll 1/2 Marathons
CMD- “Can Make Donation”
Cure CMD has just made it easier for you to direct your donations.
Visit www.curecmd.org/donate to find out more.
Your support drives Cure CMD’s mission to identify a treatment and bring awareness to the CMDs.
New to Cure CMD?
This year’s goal is to register the global CMD community.
Take a moment to register on the CMD International Registry (CMDIR), www.cmdir.org
CMDIR in French, German, Spanish and English. Turkish, Danish and Portuguese coming soon.
Cure CMD and S.A.M. Team Up to Move CMD Therapies Forward
2009 Cure CMD grant cycle awarded over $200,000 in CMD science, click here.
2010 Cure CMD grant application deadline, Sept 15th. For more info, click here
2010 CMD Family and Affected Individual Conference
Come learn, connect and meet the CMD community!
Registration opens on Cure CMD website, April 1st.
Conference August 14th and15th, Childrens Hospital of Philadelphia, with welcome dinner, Friday, August 13th..
Benjamin’s story
Following seven weeks of preterm labor, Benjamin was born at 37 weeks on May 2, 2002. I felt that something was wrong since he never latched on while nursing, did not seem to suck or swallow, and did not seem to have appropriate reflexes. I was reassured that he was just a “sleepy baby,” and had passed all his examinations. One day later, while still in the hospital he suffered a cardiac arrest in my arms. Continue reading Benjamin’s story
Current Trials and Studies
Apr 15, 2010: For up to date information on CMD and LGMD clinical studies and trials
Trials and Studies Archive
Cure CMD Research News
Jul 26, 2010: CMD Quality of Life and Caregiver Assessment Survey
CMD Affected Individual and Caregiver Quality of Life Survey to be published August issue of Neuromuscular Disorders, shedding light on key areas to positively and negatively impact lives of people with CMD and their caregivers
More…
Jul 23, 2010: Cure CMD announces CMD BioBank
To find treatments for the CMDs and identify new CMD genes requires support from the CMD community. If you have CMD or are a sibling or parent of someone with CMD, we would like you to consider supporting CMD Discovery through donating a blood or skin biopsy sample to the CMD BioBank located at the NIGMD respository at the Coriell Medical Institute.
More…
Jul 23, 2010: Bio-NMD update
BIO-NMD is a three year FP7 research project concentrating on the search for non-invasive biomarkers in people with Duchenne and Becker muscular dystrophies and Collagen VI myopathies (including Ullrich congential muscular dystrophy and Bethlem myopathy). More…
May 21, 2010: Traversing the Valley of Death: A Guide to Assessing Prospects for Translational Success
Mar 20, 2010: ENMC Collagen VI Workshop report, May 2009
To read the report from the ENMC Collagen VI Workshop, click here.
