2015 Holiday Match Fundraiser

Please help to support our mission to bring treatments, and one day a cure forward by sharing our status, considering a contribution, and fundraising on our behalf. Be sure to reach out to friends and family! Click here for more information.

Mason Kreations Donates 30% of Sales to Cure CMD

Help Mason Kreations raise for Cure CMD! 30% of each purchase will be donated to Cure CMD. Free Shipping! Click here to view the Mason Kreations Etsy Page!

Alex’s story

img_0432-2My name is Sarah. My husband Tom and I welcomed Alex in October of 2006, so he’s 2 1/2 now. He also gets tons of love from his older brother Jack who is 9 1/2 and his older sister Katie who is 6. I decided to post here because every time I find any information about dystroglycanopathy, it doesn’t seem to fit Alex. Maybe others are out there who are feeling the same way. If so, I hope this will help. Continue reading Alex’s story

  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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