Benjamin and Lucas’ story

benOur son, Ben, was born after several years of infertility and much yearning for a blessed child. He was born following a grueling labor and an eventual emergency c-section with the most beautiful face and abundance of black hair like his Dad. He appeared to be a completely healthy child according to our pediatricians. Continue reading Benjamin and Lucas’ story


  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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