Kyra’s Story

Kyra was born on April 18, 2006. She is a very happy child who loves to sing, dance, play outside, swing, go on hikes and play with her cousin. She is very bright and has a great personality.  However, she was diagnosed with Merosin-Negative Congenital Muscular Dystrophy. Continue reading Kyra’s Story


  • Congenital Muscular Dystrophy

    A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. Learn more...

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